Sunday, October 26, 2014

10-26-14 Update

Time for an update.....
I'm fighting a cold and using this as an excuse to sit down and not wash the last few dishes or fold the load of laundry waiting in the dryer. Communication is more important than dishes, right?

Let's start with Ericka.  The Merida costume that I told you about last week ended up being quite a bit more difficult than I anticipated. Ericka started, but soon the fabric was giving her problems.  I took over, with her blessing, and finished it for her. She wore it yesterday at Northwest Trek's Hoot and Howl. I was not home to get her ready so I don't have a picture on my normal camera. She sent me one via text and if I can figure out how to put it on here I will.  She looked great. She died her hair and with her natural curls and the dress she made a great Merida. She got lots of complements.

Marty was doing fine after his surgery until this morning.  He had not have any pain until early this morning. He called the doctor and the doctor said this was normal and to take some of the hydrocodone that was prescribed.  He has taken two today and slept A LOT.  It is to bad that the doctor did not let us know that this was a possibility ahead of time. It would not have changed anything, it just would have been nice to know and not worry this morning. Luckily it didn't happen yesterday. Marty was the one to take Ericka to Hoot and Howl. He had a lot of fun also. He dressed up and if I can figure out how to post the picture of Ericka, I will post a picture of Marty also.

Marissa has been on a downward spiral this past month. Her headache has been worse, her stomach upset, very tired and experiencing balancing problems and dizziness. We did not know if this was the worse before better stuff that Lyme patients go through or not. Marissa had an appointment with her Lyme doctor on Thursday. He determined that the worsening symptoms were due to one of her medications congregating around her nerves. He has taken her off that medication, but it is a fat soluble drug that has a half-live of 21 days. Therefore it will take a month or two to get most of it out of her system and her to feel better.

I want to take a moment and say thank you to a number of people who have really helped Marissa out the last few weeks. She has been very lonely and depressed lately, partially due to medications, partially due to the situation she is in. The depression was pretty bad a couple of weeks ago and she reached out to some friends for some help. Mostly she just needs some contact with people her own age, and the knowledge that she is not forgotten. A number of people responded and I want to say thank to you Katie Z, Zoe C, Brooke H, Sarah Z, Sidney R. and Brianna S. for reaching out and taking a few moments out of your busy days to text and Marissa and include her. It really helps a lot!

I also want to say thank you to her Color Guard coach who sent a message to me that I then read to Marissa that allowed Marissa to realize that even though she was not able to perform with the guard she was not hated and everyone understood her situation. She invited Marissa do join the band at the Everett competition yesterday and participate in what she could. Marissa made it through part of the day before I had to bring her home. I want to extend the thanks to the entire color guard who were happy to see Marissa and made her feel wanted even though she could not participate. Marissa has felt terrible not being able to be part of the team and has felt that she has let her team down, so this really helped.

Now on to me.... The diagnoses of Lupus threw me for a couple of days. I was pretty upset, but now I'm doing fine. My doctor went over the lab results with me and we caught it so early that it almost doesn't even count as Lupus. Kind of a pre-Lupus thing. I have my first appt with the rheumatologist on Tuesday, so I will know more then. The biggest thing right now is that I get to have a hysterectomy soon.  The ultrasound I had a few weeks ago, showed that my uterus is twice the size of normal and that I have a walnut sized fibroid. They couldn't even find my ovaries because of the size of the uterus, so we don't know their status. My appt with the gynecologist is November 4th. Hopefully I can schedule the surgery soon after that so I can be mostly recovered before the Christmas season starts.  I'll let you know once I get it scheduled.

My family, both immediate and extended has been very understanding and wanting to make the annual Thanksgiving gathering that happens at my house easier for me and Marissa this year. After coming up with many options I talked to Marty and the girls and they want to go ahead as normal. They said even if I was stuck on the couch and able to do nothing they would take over and do everything. I am a lucky wife and mom. I know that they mean it and that they are capable of doing it. Having things as close to normal is good for Marissa also.  She doesn't like it when her illness interferes with family activities and traditions.

Ok, I suppose I should go back tot he dishes and laundry now. 


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